About Me

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cypress, ca, United States
Hi my name is Jennifer I am ShawnnBears mom. ShawnBear was born with HLHS.We chose the 3 stage surgery. Shawn had his Norwood open heart surgery on January 3rd 2008 and came home on the 19th . He was doing well until about three months old when they decided to do the Glenn early at 3months because of low oxagen sats. When Shawn came back for surgery he was ok for about 3 hours then he came very close to leaving us. He was rushed back to the O.R. and came back in stable condition. Despite that stepback we were sent home about a week later. Shawn was sent home on oxagen because his sats were still in the low 70's. cardio doc said that we should concider another open heart sugery to repair this. Shawn had his reconstuction of the tricuspid valve at CHLA by Dr Vaugh Starnes.December 2009 shawnBear had a pacemaker placed due to low heart rate while sleeping. Shawn has been long but he smiled all the way through. By looking at my amazing boy you would not know that he was born with only half a heart and had 4 open heart surgerys . I have learned a lot from Shawn but the most important thing is not to take life for granted. Enjoy every moment

Wednesday, July 13, 2011

A long Day

Well I have been  a moving and trucking around today. Woke up and took my In Laws to the Airport as they are off to Vegas to Celebrate Joels Bday . I hope they have an awesome time, they deserve it . After that I went to see my ShawnBear . I miss him so much and I love being there with him even though I know his spirt is not there and he is in Heaven that is my little Safe Haven that I have no worries when I am visiting I feel  so whole . I miss my ShawnBear so much . I want him back so badly. After that I went and got my hair highlighted and a trim so I can look nice for my first day of work on Monday. I am excited and scared at the same time . It will keep me bizy and get me outta bed because I have trouble doing that on a day to day basis. So I hope this is a step in the right direction . I really hope it is . After that I came home and dyed Julias Hair pink for her . Shes been bugging forever and I finally got the color for her . I also found out today that my brother who is about to have a baby in a month just lost his job. I am so worried about him and I m sure he is super stressed out . Especially now with a wife and baby about to be here . I m worried about them. I hope everything works out . I am keeping them in my prayers . Now Im just laying in bed hoping that I fall asleep fairly early cuz I am exausted . I love you ShawnBear for always and forever .

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