About Me

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cypress, ca, United States
Hi my name is Jennifer I am ShawnnBears mom. ShawnBear was born with HLHS.We chose the 3 stage surgery. Shawn had his Norwood open heart surgery on January 3rd 2008 and came home on the 19th . He was doing well until about three months old when they decided to do the Glenn early at 3months because of low oxagen sats. When Shawn came back for surgery he was ok for about 3 hours then he came very close to leaving us. He was rushed back to the O.R. and came back in stable condition. Despite that stepback we were sent home about a week later. Shawn was sent home on oxagen because his sats were still in the low 70's. cardio doc said that we should concider another open heart sugery to repair this. Shawn had his reconstuction of the tricuspid valve at CHLA by Dr Vaugh Starnes.December 2009 shawnBear had a pacemaker placed due to low heart rate while sleeping. Shawn has been long but he smiled all the way through. By looking at my amazing boy you would not know that he was born with only half a heart and had 4 open heart surgerys . I have learned a lot from Shawn but the most important thing is not to take life for granted. Enjoy every moment

Thursday, January 29, 2009

Shawns 2nd Haircut


Hi all. Shawn just got his 2nd haircut yesterday. He looks so cute. Like a little mini marine. Shawn is doing great. He had a clinic appointment today for a well baby check . He had to get four shots today and one more in a month and then hes all caught up. RSV in about a week and those seem to be the worst. Shawn was never circumsized because of his surguries they didnt want to risk infection to his heart but the doc noticed it doesnt look right so there sending us to the urolagist to follow up and make sure everything is ok. Shawn still hasnt started walking yet, probably because I want him to soooo bad =). Everything is fine according to the docs its normal for kids not to walk yet. I hope that everyone has had a great week. God Bless.