About Me

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cypress, ca, United States
Hi my name is Jennifer I am ShawnnBears mom. ShawnBear was born with HLHS.We chose the 3 stage surgery. Shawn had his Norwood open heart surgery on January 3rd 2008 and came home on the 19th . He was doing well until about three months old when they decided to do the Glenn early at 3months because of low oxagen sats. When Shawn came back for surgery he was ok for about 3 hours then he came very close to leaving us. He was rushed back to the O.R. and came back in stable condition. Despite that stepback we were sent home about a week later. Shawn was sent home on oxagen because his sats were still in the low 70's. cardio doc said that we should concider another open heart sugery to repair this. Shawn had his reconstuction of the tricuspid valve at CHLA by Dr Vaugh Starnes.December 2009 shawnBear had a pacemaker placed due to low heart rate while sleeping. Shawn has been long but he smiled all the way through. By looking at my amazing boy you would not know that he was born with only half a heart and had 4 open heart surgerys . I have learned a lot from Shawn but the most important thing is not to take life for granted. Enjoy every moment

Wednesday, March 11, 2009

Cardio Appointment

Shawn had a cardio appointment yesterday. Well let me start by saying that we had a Holter monitor test done in the end of February because when Shawn was in the hospital last time his cardio doc seen something on the tele that wasnt normal. Well the results of that we got today.
Shawn will have to have a PACEMAKER put in because when he was sleeping his heart rate went down into the 30's. When I found out this is another open chest thing that he was going to have to go through I was saddened. Not just once but every time they need to replace the wires as he grows because his anatamy doesnt allow them to do it any other way. So there are looking to do the surgery as soon as they can get him in. My cardio doc will be calling today with the details. I will post more soon.