About Me

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cypress, ca, United States
Hi my name is Jennifer I am ShawnnBears mom. ShawnBear was born with HLHS.We chose the 3 stage surgery. Shawn had his Norwood open heart surgery on January 3rd 2008 and came home on the 19th . He was doing well until about three months old when they decided to do the Glenn early at 3months because of low oxagen sats. When Shawn came back for surgery he was ok for about 3 hours then he came very close to leaving us. He was rushed back to the O.R. and came back in stable condition. Despite that stepback we were sent home about a week later. Shawn was sent home on oxagen because his sats were still in the low 70's. cardio doc said that we should concider another open heart sugery to repair this. Shawn had his reconstuction of the tricuspid valve at CHLA by Dr Vaugh Starnes.December 2009 shawnBear had a pacemaker placed due to low heart rate while sleeping. Shawn has been long but he smiled all the way through. By looking at my amazing boy you would not know that he was born with only half a heart and had 4 open heart surgerys . I have learned a lot from Shawn but the most important thing is not to take life for granted. Enjoy every moment

Tuesday, April 14, 2009

Pacemaker Update


So we ended up not doing the pacemaker as our cardio doc had planned. When we got to CHLA to meet with the Dr about it and do preop labs, they decided to wait because they are unsure if Shawn really needs it. Its a month later and we just repeated a holter monitor this weekend so we will know the results this friday at his cardio appointment. I think they might be trying to hold off so they can put it in at the time of the Fontan so I am thinking that might come sooner than later. The docs over at CHLA seemed to be concerned about opening him up again in such a short period of time. Because of his tricupid repair he has had 3 open heart surgeries in only a year. I hope that we can get some more answers this week at his cardio appointment to put my mind at ease a little. Other than that Shawns doing great and being a normal little one year old that has almost mastered walking now. I am posting a pic from easter with this update .