About Me

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cypress, ca, United States
Hi my name is Jennifer I am ShawnnBears mom. ShawnBear was born with HLHS.We chose the 3 stage surgery. Shawn had his Norwood open heart surgery on January 3rd 2008 and came home on the 19th . He was doing well until about three months old when they decided to do the Glenn early at 3months because of low oxagen sats. When Shawn came back for surgery he was ok for about 3 hours then he came very close to leaving us. He was rushed back to the O.R. and came back in stable condition. Despite that stepback we were sent home about a week later. Shawn was sent home on oxagen because his sats were still in the low 70's. cardio doc said that we should concider another open heart sugery to repair this. Shawn had his reconstuction of the tricuspid valve at CHLA by Dr Vaugh Starnes.December 2009 shawnBear had a pacemaker placed due to low heart rate while sleeping. Shawn has been long but he smiled all the way through. By looking at my amazing boy you would not know that he was born with only half a heart and had 4 open heart surgerys . I have learned a lot from Shawn but the most important thing is not to take life for granted. Enjoy every moment

Sunday, March 15, 2009

Shawn walking

Shawn walking

Pacemaker Surgery


So the doc's from CHLA called and we will be going for pre-op work up's and to talk with the surgeon tomorrow morning and then surgery on Tuesday for Shawns pacemaker. I feel a little better about the whole thing now hearing from all the great moms in my group and that there kidos seem to do so much better after the pacemaker is put in. I am so scared for Shawn this time because he is so much older and is more aware of his surroundings and whats going. I feel so unprepared for all of this to. Thinking that we werent looking at surgery until April of next year. I will post an update after surgery . Everyone please pray for Shawn .