About Me

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cypress, ca, United States
Hi my name is Jennifer I am ShawnnBears mom. ShawnBear was born with HLHS.We chose the 3 stage surgery. Shawn had his Norwood open heart surgery on January 3rd 2008 and came home on the 19th . He was doing well until about three months old when they decided to do the Glenn early at 3months because of low oxagen sats. When Shawn came back for surgery he was ok for about 3 hours then he came very close to leaving us. He was rushed back to the O.R. and came back in stable condition. Despite that stepback we were sent home about a week later. Shawn was sent home on oxagen because his sats were still in the low 70's. cardio doc said that we should concider another open heart sugery to repair this. Shawn had his reconstuction of the tricuspid valve at CHLA by Dr Vaugh Starnes.December 2009 shawnBear had a pacemaker placed due to low heart rate while sleeping. Shawn has been long but he smiled all the way through. By looking at my amazing boy you would not know that he was born with only half a heart and had 4 open heart surgerys . I have learned a lot from Shawn but the most important thing is not to take life for granted. Enjoy every moment

Monday, January 5, 2009

WERE HOME =)


We made it home . Just being at the hospital for a couple of days seems like forever. Plus Shawn wasnt getting the much needed rest he needed so he can get better. They come in at least once every four hours and in the middle of that there is nurse assistants, people changing trash bags,and not to mention if you have a neighbor. So many distractions. So still not back to his self yet but he is well on his way. Right now we are battling with Shawn about his wanting to be in mommy or daddys arms all the time. Hes not so happy about that. His Dr says its not good to pick him up every time he crys and that letting him cry will not hurt his heart,so were trying not to pick him as much. Its so hard =(

Sunday, January 4, 2009

Shawn admitted to CHOC =(

=(
I am sitting in the hospital with Shawn today . We came into the emergency room yesterday at about 9 pm because of respitory distress and blueness in his hands, feet, and lips. So they did some blood work and his CRP came back elevated with means that he has an infection. They are unable to tell me exactly what type of infection he has so they are treating him with antibiotics. They did some other blood test but they say it takes two dayss to get those tests back . Being in the hospital is always hard especially for Shawn. Not having his brother sister or daddy with him. Not to mention he is pretty close to nana and grandpa since they were kind enough to take us into there house. He is very spoiled. In my eyes he deserves it. So now were just sitting around waiting to see what happens.


I will update soon