About Me

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cypress, ca, United States
Hi my name is Jennifer I am ShawnnBears mom. ShawnBear was born with HLHS.We chose the 3 stage surgery. Shawn had his Norwood open heart surgery on January 3rd 2008 and came home on the 19th . He was doing well until about three months old when they decided to do the Glenn early at 3months because of low oxagen sats. When Shawn came back for surgery he was ok for about 3 hours then he came very close to leaving us. He was rushed back to the O.R. and came back in stable condition. Despite that stepback we were sent home about a week later. Shawn was sent home on oxagen because his sats were still in the low 70's. cardio doc said that we should concider another open heart sugery to repair this. Shawn had his reconstuction of the tricuspid valve at CHLA by Dr Vaugh Starnes.December 2009 shawnBear had a pacemaker placed due to low heart rate while sleeping. Shawn has been long but he smiled all the way through. By looking at my amazing boy you would not know that he was born with only half a heart and had 4 open heart surgerys . I have learned a lot from Shawn but the most important thing is not to take life for granted. Enjoy every moment

Saturday, February 7, 2009

Shawns 1St Ambulance Ride=(

Last night was our first ambulance ride. I have always known whenShawn wasn't feeling well I could get him to the ER on my own.Yesterday Shawn woke up with a little fever and I thought since hewas teething it really wasn't anything to worry about. So I gave himsome Motrin and he was fine for about six hours. He woke up from anap and had a bad fever, he was hot to the touch so I tryed coolinghim down in the sink with some luke warm water. While I was doingthat he started shaking and his lips, hands and feet started turningblue. Well this was a very dark blue some blue I have seen before andits not concerning .So I instantly called 911. When they got therethey started oxyagen and got him to the hospital. The chest xray wasclear and no RSV =). They say that he probably has a VIRUS. they cannever really tell what it is .My biggest concern is that they seen his heart missing a beat andthey have now done and EKG and the put him on a halter monitor. Hasthis ever happen to anyone before or something similar with themissed beat or halter monitor? I have heard a few people talk abouthaving one but not why or what the outcome was . thank youShawn seems to be doing ok and is in good spirits so hopefullyeverything is ok . I will post again as soon as I know anything