Well woke up really late this afternoon and I am kinda in a funk my back hurts. We talked about going to the beach last night but not sure that were going yet. HOpefully getting out of the house is always good. When I get out I seem to be ok sometimes. Anyhow I read some of my non profit book last nite and it has lots of good information . I need to get ahold of some people at CHOC next to find out about donations and see what I need to do . Hopefully they will let me be a part of handing them out to children
I really think this is a great idea and I really am excited to help other familys in the hospital. Well short post today but I will update again soon .
About Me
- Shawns Mommy
- cypress, ca, United States
- Hi my name is Jennifer I am ShawnnBears mom. ShawnBear was born with HLHS.We chose the 3 stage surgery. Shawn had his Norwood open heart surgery on January 3rd 2008 and came home on the 19th . He was doing well until about three months old when they decided to do the Glenn early at 3months because of low oxagen sats. When Shawn came back for surgery he was ok for about 3 hours then he came very close to leaving us. He was rushed back to the O.R. and came back in stable condition. Despite that stepback we were sent home about a week later. Shawn was sent home on oxagen because his sats were still in the low 70's. cardio doc said that we should concider another open heart sugery to repair this. Shawn had his reconstuction of the tricuspid valve at CHLA by Dr Vaugh Starnes.December 2009 shawnBear had a pacemaker placed due to low heart rate while sleeping. Shawn has been long but he smiled all the way through. By looking at my amazing boy you would not know that he was born with only half a heart and had 4 open heart surgerys . I have learned a lot from Shawn but the most important thing is not to take life for granted. Enjoy every moment
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