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cypress, ca, United States
Hi my name is Jennifer I am ShawnnBears mom. ShawnBear was born with HLHS.We chose the 3 stage surgery. Shawn had his Norwood open heart surgery on January 3rd 2008 and came home on the 19th . He was doing well until about three months old when they decided to do the Glenn early at 3months because of low oxagen sats. When Shawn came back for surgery he was ok for about 3 hours then he came very close to leaving us. He was rushed back to the O.R. and came back in stable condition. Despite that stepback we were sent home about a week later. Shawn was sent home on oxagen because his sats were still in the low 70's. cardio doc said that we should concider another open heart sugery to repair this. Shawn had his reconstuction of the tricuspid valve at CHLA by Dr Vaugh Starnes.December 2009 shawnBear had a pacemaker placed due to low heart rate while sleeping. Shawn has been long but he smiled all the way through. By looking at my amazing boy you would not know that he was born with only half a heart and had 4 open heart surgerys . I have learned a lot from Shawn but the most important thing is not to take life for granted. Enjoy every moment

Saturday, June 27, 2009

Pacemaker Update


Shawn is doing well. We have had several cardio visits and a few holter monitors since my last post. Not to mention a stay a CHOC for a few days in the CVICU. The month after Shawns last RSV shot he got it. We had been battling colds all winter and didnt get RSV then when we think the coast is clear BANG. He tested postative for it =(. So we got to see alot of the nurses that havent seen Shawn since he was 3 months old, because our last surgery was at CHLA. It was nice to see them I just wish it would of been on better circumstances. During that hospitalization they decided to put him on a heart medication called Amioderone to try and help with his rythem issue. Well he was on it for a month and a half and they did another Holter monitor and cardio Dr said there were no changes so they took him off that med and will repeat the Holter in one month. So that is where we are at for now and Shawn is still his jolly ol self. Cranky on some days and draging like he is so tired some of the time, but mostly just being a kid. I will update again soon.
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