About Me

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cypress, ca, United States
Hi my name is Jennifer I am ShawnnBears mom. ShawnBear was born with HLHS.We chose the 3 stage surgery. Shawn had his Norwood open heart surgery on January 3rd 2008 and came home on the 19th . He was doing well until about three months old when they decided to do the Glenn early at 3months because of low oxagen sats. When Shawn came back for surgery he was ok for about 3 hours then he came very close to leaving us. He was rushed back to the O.R. and came back in stable condition. Despite that stepback we were sent home about a week later. Shawn was sent home on oxagen because his sats were still in the low 70's. cardio doc said that we should concider another open heart sugery to repair this. Shawn had his reconstuction of the tricuspid valve at CHLA by Dr Vaugh Starnes.December 2009 shawnBear had a pacemaker placed due to low heart rate while sleeping. Shawn has been long but he smiled all the way through. By looking at my amazing boy you would not know that he was born with only half a heart and had 4 open heart surgerys . I have learned a lot from Shawn but the most important thing is not to take life for granted. Enjoy every moment

Thursday, January 29, 2009

Shawns 2nd Haircut


Hi all. Shawn just got his 2nd haircut yesterday. He looks so cute. Like a little mini marine. Shawn is doing great. He had a clinic appointment today for a well baby check . He had to get four shots today and one more in a month and then hes all caught up. RSV in about a week and those seem to be the worst. Shawn was never circumsized because of his surguries they didnt want to risk infection to his heart but the doc noticed it doesnt look right so there sending us to the urolagist to follow up and make sure everything is ok. Shawn still hasnt started walking yet, probably because I want him to soooo bad =). Everything is fine according to the docs its normal for kids not to walk yet. I hope that everyone has had a great week. God Bless.

Thursday, January 22, 2009

Kisses


Hi all . Shawn is doing fantastic. =) . He has more and more attitude every day but he is still the cutest baby ever. Shawn has been handing out kisses like crazy. All is well around our house right now. I just started school recently in hopes to get through my gen ed classes so I can start my RN program in January 2010. I am so excited. Shawn has RSV next week and choc clinic for immunizations. I will post again soon. I hope every one is having a wonderful year so far. God Bless


Jennifer

Sunday, January 11, 2009

New teeth


Well I thought Shawn was starting to get sick again but to my suprize he has 2 new teeth coming in on the top. There is one on bolth sides, poor thing thats probably why he has also been so cranky. Besides that all is well. Shawns older cousin Stephanie just had her baby on January 9th. He is at home and doing well. As for Shawn when he was in the hospital they started him on one of the meds he was taking a while back Enalapril. Its for blood pressure . The carido doc says it helps the heart function better without having to work as hard. So were looking at the Fontan surgery in spring of next year as long as everything goes well. I am sure it will he has done so great this far . He really is miracle baby and I am thankful for every moment that I get to spend with him. Shawn hasnt started walking yet but he is getting close = 0

Monday, January 5, 2009

WERE HOME =)


We made it home . Just being at the hospital for a couple of days seems like forever. Plus Shawn wasnt getting the much needed rest he needed so he can get better. They come in at least once every four hours and in the middle of that there is nurse assistants, people changing trash bags,and not to mention if you have a neighbor. So many distractions. So still not back to his self yet but he is well on his way. Right now we are battling with Shawn about his wanting to be in mommy or daddys arms all the time. Hes not so happy about that. His Dr says its not good to pick him up every time he crys and that letting him cry will not hurt his heart,so were trying not to pick him as much. Its so hard =(

Sunday, January 4, 2009

Shawn admitted to CHOC =(

=(
I am sitting in the hospital with Shawn today . We came into the emergency room yesterday at about 9 pm because of respitory distress and blueness in his hands, feet, and lips. So they did some blood work and his CRP came back elevated with means that he has an infection. They are unable to tell me exactly what type of infection he has so they are treating him with antibiotics. They did some other blood test but they say it takes two dayss to get those tests back . Being in the hospital is always hard especially for Shawn. Not having his brother sister or daddy with him. Not to mention he is pretty close to nana and grandpa since they were kind enough to take us into there house. He is very spoiled. In my eyes he deserves it. So now were just sitting around waiting to see what happens.


I will update soon

Tuesday, December 30, 2008

Recent pic of shawn


Shawn just turned one a few days ago and I would like to share a new picture

. Mommys christmas present=)

My first post!


Hi all my name is Jennifer. I am Shawns mom . I have created this website so I can share Shawns amazing journey with everyone. He is such a blessing and has been my hero from the day he was born. Shawn has 3 other siblings Daniel who is 12, Julia who is 9, and Matthew who is 5 years old. I am so blessed to have 4 amazing kids.